Searchable abstracts of presentations at key conferences in endocrinology

ea0051p028 | Miscellaneous/other | BSPED2017

Introducing a patient held record in a turner transition clinic, RHC Glasgow

McBride Teresa , Mason Avril

Introduction: A Patient Held Record (PHR) has been developed for use in adolescent girls with Turner Syndrome (TS) attending a dedicated Turner Transition clinic, RHC Glasgow. The PHR has been devised to encourage knowledge of TS; medcial care and ways to maintain good health and to promote self advocacy.Aim: To assess patient acceptability and user friendliness of a PHR in adolescent girls with TS.Method: A PHR and questionnaire w...